Tuesday, May 26, 2009
Sickle Cell
I received some potentially devastating news today. All newborns get a blood screen in the hospital and then they send home a lab sheet to do a follow up blood screen with in the first week, well I received a letter today from the AZ Dept of Health Service stating that Leeah is testing positive with either Sickle Cell Disease or Sickle Cell Trait. We have to go and get more blood tests to confirm the screening done two weeks ago. In addition, I am asking the doctor to test Ayana too because I have no idea if she tested positive at birth. I would hope their Mom would have passed that kind of information but I also feel like I need to be proactive and hopefully rule it out. So much running through my mind right now. This is a horrible disease and I am just praying that she is only a carrier. If she is only a carrier than she will need to have her husband tested and receive some genetic testing/counselling prior to having babies. I have to be careful not to let my imagination go too far down the path with either scenerio because I could make myself very depressed. So, for now I am going to be on my knees and start reading and researching this disease. I would covet prayers from all of you too.
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6 comments:
We will lift you before our God. Know that Craig and I understand the feelings of a parent when your child is in the diagnosis stage of a disease. Rest in the Healer! He knows her little body as He created it to be. Call if you need an ear. love ya!
I am on my knees with you. Praying.
Father,
Hold this family close to you. Be with these precious children and please give Kristen and Jamie your wisdom and peace Lord as they walk through this. We lift them up to you Lord. You are our Help.
Amen
Remember...
Jer. 29:2
Prayers you shall have. We had quite a few patients at Detroit Receiving when I was there with both the disease and the trait form. If there are any questions I can answer please ask.
Praying with and for you! If there is anything we can do please don't hesitate to call.
All our love,
Courtney
Praying. Thank you for letting us know....
wow- will be praying- keep us posted!
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